aboutus

About Us

Kristi Anderson- Director
I was diagnosed with Sarcoidosis in 1988. Since then it has spread to
multiple organs. I joined the board of the Sarcoid Networking Association in
2002, the same year I started a support group in Albany, Oregon. A new group
was begun in Portland, Oregon, in 2005. My goal has always been to find ways
to pull people together to find out more about Sarcoidosis and what can be
done to stop this disease. As the idea of a registry grew, we found that there
were others who were as enthusiastic about the registry as we were. Under
the leadership of the Sarcoid Networking Association, we now have this
registry as a reality.
I have seven children and eighteen grandchildren. I have been a teacher of
children ages birth through college-age. I am also on the board of Landmark
Ministries International, a group of mission-minded people whom I am proud
to work with. I am currently a Special Services Coordinator for
UCAN/HeadStart in Roseburg, Oregon. I have held managerial positions in
many of the jobs I have worked in and I look forward to being involved in the
growth and understanding that we will see from this current endeavor.
This registry functions under the umbrella of Sarcoid Networking Association.

Sarcoid Networking Association:
Mission Statement:
Founded in 1992, the Sarcoid Networking Association brings together
support, education and resources to improve the lives of those affected by
Sarcoidosis.
Philosophy:

“THROUGH UNITY AND KNOWLEDGE, COMES TRUTH” We, the members of the
Sarcoid Networking Association unite to... create and foster an environment
of empathy, enlightenment, encouragement and empowerment in which we
can all come to a fuller expression of our own unique gifts and talents in spite
of having a long term illness; use our gifts and positive capabilities to
encourage each other to fully live each day in a compassionate and fruitful
atmosphere; serve as a network system of support and resources through
newsletter, telephone, correspondence and group meetings for all
individuals who demonstrate an interest in Sarcoidosis, opening the doors of
communication, education and research; disseminate information to the
general public to help them recognize and understand Sarcoidosis as a
serious medical problem; provide health officials and the medical community
with statistical information obtained from group participation, so they will be
able to recognize Sarcoidosis as a serious health concern, especially data
about people who are afflicted with Sarcoidosis, people who become
disabled with Sarcoidosis, and the young and old who die from Sarcoidosis.

We, the members of the Sarcoid Networking Association, look beyond the
sufferings and struggles in the life of Sarcoidians to finding a cure for this
disease, knowing that together we can all make a difference through
communication, commitment and education.

Scientific Advisory Board:

Dr. Om Sharma:
Current president of the World Association of Sarcoidosis and other
Granulomatous Disorders (WASOG). Professor of Medicine at the Keck School
of Medicine at the University of Southern California, Los Angeles. He has
authored or edited five books, eight monographs, and written about 400
articles, short papers, editorials and reviews on the topics of Sarcoidosis,
tropical medicine, hypersensitivity pneumonitis, interstitial lung disease,
other pulmonary disorders, and history of medicine. He is also on the
Scientific Advisory Board of the Sarcoid Networking Association and other
organizations.

Dr. Ganesh Raghu:
Professor of Medicine and Pulmonary Medicine/Chief of Chest Clinic;
Pulmonary and Critical Care Medicine; Chief of the Chest Clinic; Director of
Lung Transplant Program; Special Expertise in Sarcoidosis; University of
Washington Medical Center.

Dr. Gopal Allada:
Dr. Allada is currently at the Oregon Health Science and Health University in
Portland, Oregon, in the department of Pulmonary Critical Care Medicine. He
is an Assistant Professor of Medicine, the Adult Program Director of the
Cystic Fibrosis Clinic, and Co-Course Director of the Pulmonary Course in
Medical School. He has published many articles and, in October of 2005,
spoke at the Sarcoid Networking Association conference in Seattle,
Washington.

Dr. Daniel Mulkey:
Dr. Mulkey is currently in the field of Internal Medicine in Albany, Oregon, with
a special interest in pulmonary disease. He has been a consulting physician
for our support group in Albany, since 2001, and has been a great inspiration
and encouragement in this registry.
We are honored to have these learned doctors and scientists on our advisory
board.