| Sarcoidosis Registry "Resource Links" |
 |
 |
 |
 |
 |
 |
 |
 |
 |
This page has links that we know to be reputable in knowledge and in mission.
There are surely many more that we don't know about, so please contact us if
there are others you would like to see here. We also have a more
comprehensive list that is sent out to anyone who contacts us and is interested.
Please be proactive in your care and knowledge of this disease.
www.sarcoidosisnetwork.org. This is the our link. Lots of information and other
links.
Sarcoid Networking Association: 5302 South Sheridan Avenue
Tacoma, WA
253.826.7737
Lynn Short
www.stopsarcoidosis.org. A link to The Foundation for Sarcoidosis Research
www.jsof.org. This site was built as a memorial to a young mother who lost the
fight against Sarcoidosis.
www.nlm.nih.gov/medlineplus/tutorials/sacroidosis/html/index.htm. Yes,
Sarcoidosis really is spelled wrong, but this is a wonderful tutorial and really
speaks clearly about this disease.
www.webmd.com- updated and varied.
www.sarcoidosisonlinesites.com- excellent clearinghouse of sites.
www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html- an excellent site
by the National Institutes of Health
.
www.sarcoidosisresearch.org
www.clinicaltrials.gov- This site reports current clinical trials.
www.sarcoidconnection.com
Sarcoidosis Awareness Network
1031 Farran Ave.
Chetlenham, MD 20623
301.372.2885
Linda Lanier
The National Sarcoidosis Society, Inc.
4747 S. M.L. King Dr. Ste. 512
Chicago, Ill 60615
773.536.7754
Glenda Fulton
www.sarcoidosissociety.org
sarcoidosis2@hotmail.com
Sarcoidosis Research Institute
Bloomington, Champaign, Normel, Peoria, Springfield, Urbana
309.438.7884
Dr. Eddie Glenn
Sarcoid Life
6505 W. Park Blvd. Ste. 306-131
Plano, TX 75093
214,223.0475
Dan Stoddard
www.sarcoidlife.org
Let’s Breath-Sarcoidosis Support Group
www.geocities.com/HotSprings/Spa.3513
Brenda Harris
www.aarda.org. This is the website of an organization that specializes in
autoimmune diseases.
http://groups.msn.com/sarcoidbuddies. This is Kipy's site. She always has
great information and is a great help to all of us.
www.wasog.org This is a link to WASOG, the World Association for Sarcoidosis
and Other Granulomous Diseases. This is a site that represents a world-wide
group of doctors dedicated to research about these diseases
http://sarcoidosissupport.ning.com
This site was created to give support and information to people with sarcoidosis
and their families. Anne Conlon is the site manager.
There are surely many more that we don't know about, so please contact us if
there are others you would like to see here. We also have a more
comprehensive list that is sent out to anyone who contacts us and is interested.
Please be proactive in your care and knowledge of this disease.
www.sarcoidosisnetwork.org. This is the our link. Lots of information and other
links.
Sarcoid Networking Association: 5302 South Sheridan Avenue
Tacoma, WA
253.826.7737
Lynn Short
www.stopsarcoidosis.org. A link to The Foundation for Sarcoidosis Research
www.jsof.org. This site was built as a memorial to a young mother who lost the
fight against Sarcoidosis.
www.nlm.nih.gov/medlineplus/tutorials/sacroidosis/html/index.htm. Yes,
Sarcoidosis really is spelled wrong, but this is a wonderful tutorial and really
speaks clearly about this disease.
www.webmd.com- updated and varied.
www.sarcoidosisonlinesites.com- excellent clearinghouse of sites.
www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html- an excellent site
by the National Institutes of Health
.
www.sarcoidosisresearch.org
www.clinicaltrials.gov- This site reports current clinical trials.
www.sarcoidconnection.com
Sarcoidosis Awareness Network
1031 Farran Ave.
Chetlenham, MD 20623
301.372.2885
Linda Lanier
The National Sarcoidosis Society, Inc.
4747 S. M.L. King Dr. Ste. 512
Chicago, Ill 60615
773.536.7754
Glenda Fulton
www.sarcoidosissociety.org
sarcoidosis2@hotmail.com
Sarcoidosis Research Institute
Bloomington, Champaign, Normel, Peoria, Springfield, Urbana
309.438.7884
Dr. Eddie Glenn
Sarcoid Life
6505 W. Park Blvd. Ste. 306-131
Plano, TX 75093
214,223.0475
Dan Stoddard
www.sarcoidlife.org
Let’s Breath-Sarcoidosis Support Group
www.geocities.com/HotSprings/Spa.3513
Brenda Harris
www.aarda.org. This is the website of an organization that specializes in
autoimmune diseases.
http://groups.msn.com/sarcoidbuddies. This is Kipy's site. She always has
great information and is a great help to all of us.
www.wasog.org This is a link to WASOG, the World Association for Sarcoidosis
and Other Granulomous Diseases. This is a site that represents a world-wide
group of doctors dedicated to research about these diseases
http://sarcoidosissupport.ning.com
This site was created to give support and information to people with sarcoidosis
and their families. Anne Conlon is the site manager.