Sarcoidosis
Registry
"What is
Sarcoidosis"
What Is Sarcoidosis?


  Sarcoidosis is a multi-systemic disease of unknown origin that can attack any
organ or area of the body.

    “Sarcoidosis involves inflammation that produces tiny lumps of cells in
various organs in your body. The lumps are called granulomas because they
look like grains of sugar or sand. They are very small and can be seen only
with a microscope. These tiny granulomas can grow and clump together,
making many large and small groups of lumps. If many granulomas form in an
organ, they can affect how the organ works. This can cause symptoms of
Sarcoidosis. Sarcoidosis can occur in almost any part of your body, although it
usually affects some organs more than others.”
( NHLBI website:
www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html )
  
  While once thought rare, it has been found that Sarcoid affects thousands of
people around the world. The most common organ involvement is the lungs,
but Sarcoid also attacks the nervous system, the eyes, spleen, liver, kidneys,
joints, bones, muscles, digestive system, skin, heart, nose, throat, and other
areas.
  
  There is no known cause although environmental and viral causes are being
examined. The ACCESS study through the NIH has indicated that there may be
a genetic link. You can go to
www.nhlbi.nih.gov for more information about
this study. There is also no known cure for Sarcoidosis.
  
  One thing that we do know is that the data concerning Sarcoid is in need of
being updated. There are many people with Sarcoidosis who are exhibiting
symptoms that were once thought rare and some who are showing symptoms
that were once thought to be no part of Sarcoidosis. Sarcoid is a mimic of
other diseases and, often, the symptoms are  blamed on other diseases.
 
   For more information about what Sarcoidosis is, please click on the NIH link
above and look at our page of related links for reliable information.